Pain is Real.

Last semester I took a psychopathology class. Around December I was wavering between getting a degree in Psychology and then a degree in OT or just getting my Master’s in OT, but that class pretty much made me want to run away from the psych field. Maybe it’s because I could relate to so much of what we talked about, either directly or indirectly…but I felt uncomfortable and uneasy when I sat in that classroom each day.

One topic was Somatoform Disorders, AKA having physical symptoms in the absence of actual physical damage or change. Essentially what my Prof said was that a patient with a somatoform disorder is expressing his or her desires in a way that would be acceptable to society (if someone wants to be taken care of, they will become ill so that they have a reason to be babied and nursed back to health). Okay, fine. Somatoform disorders can and do happen, and they are a part of psychology. But there can be other explanations as well.

When we got to the types of somatoform disorders section, guess what made the list? You’ve got it…pain disorders. The definition he gave for this? “Pain without or beyond what is appropriate from a physical standpoint.” Hmm…sounds similar to RSD/CRPS, only the fact that he presented it as being a somatoform disorder implies that to him, the pain is all in one’s head and not real.

While I do understand that there is theΒ possibility that someone may be having pain related to psychological conflict or issues, the way my Professor presented it, he seemed to imply that rather than it being simply a possibility, we are to view psychological problems as the probability. Basically, in his mind, the patient is faking it until physically proven otherwise.

I have seen and heard about way too many doctors brushing off their patients’ complaints and telling them their pain is all in their head, when really, it was RSD or another very real problem. It really bothers me that this Professor, who is infusing knowledge into the brains of many people who will go on to become doctors or clinical psychologists, thinks and teaches in this way. He said that in order to believe that someone is in pain, he has to see that there is physically wrong. How ignorant.

Another part about this discussion that bothered me was the fact that he, along with the rest of the class, knew that I have RSD/CRPS, a chronic pain disorder. Does that mean he thought I was faking it, and it’s all in my head? There is a good likelihood that he had that thought, despite the fact that my foot is swollen and crazy colors. Even if he didn’t think that was the case, some of my classmates might have chalked my pain disorder up to psychological problems. Again, ignorant.

But really, the issue isn’t a matter of whether or not you can see it. Because a person with a body part that looks “normal” like my left foot can be in just as much pain as someone with one that looks swollen and discolored like the right foot. It bothers me when people are so quick to discount the fact that people are in genuine pain, and instead say that they are crazy or their pain cannot possibly be as bad as they describe.

Friends, pain is real. Just because you are not in someone’s body to feel their pain (and you should be grateful that you aren’t…) does not mean that it doesn’t exist. You will never know what it’s like to be someone else and to feel what they feel, but the least you can do is have compassion toward them. Believe them when they say that they aren’t feeling well or they are in pain, because most likely, they are in even more pain than they say.

I sometimes do wish that everyone could spend one day in the shoes of a chronic pain patient, just to see what it’s like. The physical pain, emotional pain of people not believing you, and the adjustments that must be made in order to live a semi-normal life. Maybe then they would get it. Maybe then they would understand that we don’t like living this way, we don’t make up this pain. Because honestly, if you could wave a magic wand over me and have my body restored to complete health, I wouldn’t even think twice before saying yes.

People of the world, please think long and hard before telling someone that their pain is fake or “all in their head.” Whether you’re a friend, a parent, a doctor, or a random person on the street, give people the benefit of the doubt and extend to them them the gift of believing them, and of believing in them. This isn’t an easy road to travel, but those who are willing to walk alongside us and believe our pain do help carry the load.

Give the grace and love to others that you would like to have for yourself, and please remember that everyone is fighting some kind of battle, whether you see it or not.

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Another Year Over

Well, I can officially say that I’m done with another year of school! This is a particularly big accomplisment for myself because it’s the first time I’ve made it through a full academic year without being in the hospital since about…7th grade. Somehow I managed to stay away from doctors, nurses, and therapists from September until May. Success.

The significance of this accomplishment didn’t hit me until tonight. You see, in August, I wasn’t even sure I’d be able to start school again. I was in the hospital and couldn’t use my legs or arms well. When September rolled around and I found myself in a college dorm, I was elated. But there was always that small voice in the back of my mind that kept me on edge, wondering if I’d make it a full year.

One full school year with no major falls (I only slipped on the ice one time, and my backpack was a nice cushion), no dropped plates or bowls in the dining hall (see, dining hall workers-I told you I could do it on my own), no medications and no appointments. Wow.

Most people go through school and never have to plan for the possibility of having to leave. They take their occasional sick days but it’s usually nothing more than strep throat. My life is different. I have to prepare for the worst while hoping for the best.

I think it’s good that I took a treatment break this year because it allowed me to dive into my studies without extra distractions. I didn’t have to worry about finding rides to physical therapy or dealing with medication side effects. I only had to focus on the pile of textbooks, not the growing mound of medical bills. And, although my health hasn’t exactly gotten better, it hasn’t gotten terribly worse either. So it’s just stable in that department…which, for now, is good enough.

I feel such a sense of relief now that my finals are over and I don’t have to worry about going back to my school. I’m opening up a new chapter of life, leaving the past behind. We’ll see what happens!

Just Ask

“You have not because you ask not.”

A lesson I’ve been learning a lot in this season of life.

Have you ever wanted something, but you were too scared to ask for it…so you never got it? Maybe a birthday present that you secretly hoped someone would get you, but you never said anything. Or perhaps a changed grade when you knew you had the right answer. Even just the idea of asking for help can be difficult, but costly if you try to do it alone.

The thing is, people don’t always know your needs and wants. They can’t just see into your brain and figure out exactly what you’re too scared to say. It’s up to you to be an advocate for yourself and just ask.

“If you don’t ask, the answer is always no.”-Nora Roberts

Lately I’ve had to ask for help on many occasions. Rides to volunteer activities, help with my homework, and even asking for someone to carry a dish in the dining hall when my hands are too full. Just this morning, I had to have a conversation with my Professor. I asked him if I could take an exam on Thursday, even though it is scheduled for Friday. I have an appointment on Friday and would rather go home the day before, so I gave it a shot. Normally I’m pretty passive and do things according to plan, but today I gathered up my courage and asked. I figured the worst that would happen is that he’d say no, but guess what? He said yes! After all my worrying, the problem was solved by the simple action of asking.

Don’t be afraid to go after what you want. Be even more fearless when asking for what you need. People are usually willing to work with you and meet your needs, but they need to know what those are first. Take a chance, go out on a limb, and be bold. Ask, and you shall receive. What’s the worst that can happen?

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Thundersnow and other Craziness

Over the past 48 hours I’m pretty sure we’ve had almost every type of weather. Yesterday it was gorgeous and sunny, and warm enough that I didn’t even need a coat! This morning was mild, but by 10am the weather just couldn’t make up its mind! I left my anatomy class and headed to Spanish, but on the way there I was pelted by a mixture of snow, ice pellets, and rain. It was crazy! On my exposed RSD leg it felt like dozens flaming darts were shooting into my body. Not the best sensation.

The rest of the day has been a rollercoaster. More rain, snow, ice, and even thunder and lightning! The lights in my dorm have flickered a few times but I think the chances of us losing power are pretty slim (although it has happened before!)

I do love rainy days when I can sit and enjoy a good book while sipping a hot cup of tea, but my body doesn’t. Weather changes are particularly because of my RSD/CRPS so I have to do some damage control on days like today. It’s so wild to me how the body can react so strangely to changes in conditions. To minimize the pain I try to stay inside as much as possible (which seems like a given…I mean, why subject yourself to more contact with the precipitation when you already have oversensitive extremities?), relax, and keep the stress levels low. Obviously these are hard to do when you’re a busy college student, but I try.

Rain also brings back the nightmarish memories of falling the first time my RSD went full-body. Thankfully my rain guards on my crutches have been helping reduce the slip risk, but the possibility of falling is still pretty high so I have to be extra careful.

I’m very thankful that this week has been better than the past few, even with the nasty weather. I’ve been in better spirits and I’m starting to understand what we’re learning in my classes a bit more. I’m going home tomorrow to spend the weekend with my family so I am very excited about that. I need this break so badly to realign myself and take a moment to breathe.

I hope everyone is staying dry and cozy! I’m going to go finish my tea and get some work done before bed.

Peace πŸ™‚

Back to School

It has been one crazy week in the life of this crutch-girl! Whew! The week included baking, babysitting, having a birthday, and seeing my sister playing Natalie in the show Next to Normal(which, by the way, is pretty much the most amazing show in the universe). It was a wonderful week of exciting things, but I guess all the fun had to end sometime!

After taking the month of January off from school because of the nasty weather (among other things), I finally returned to campus yesterday. It has been a whirlwind of emotions since coming back. While I am very glad to be continuing my education and doing something productive with my time, I also miss the opportunities I had back home. I felt more free there, whereas here…I just feel trapped.

Don’t get me wrong, I love learning. I love being in a classroom environment and being enlightened about so many cool and interesting things, but being on campus all day, every day, has its drawbacks. I can’t drive, so that takes away the option of getting out a bit, or even just going to a coffee shop to study (yes, there is one on campus, but it’s not the same). I like getting out and being just one of the crowd, not tied to anything or anyone. But here, everyone knows that I am a student and I’m on crutches, so it’s hard to just be myself.

Which brings me to the next point…the crutches. It seems that many people see me only for my crutches and not for who I am as a person! I had my first Spanish class of the semester today, and rather than asking my name or something else, she asked what I did and how I got hurt. Like, I get that it’s kind of a big “elephant in the room,” and people are curious, but it’d be nice to be singled out for something other than my disability. Ya know?!

The sidewalks are still ridiculously slippery, which does nothing to ease my anxiety about being here. I have to look carefully at where I am going so I don’t hit a patch of ice or slush. I feel bad for the people who walk behind me, but I don’t have any other choice and I just don’t feel like having a trip to the ER today, thank you very much.

This evening I begin my night class, which is Kinesiology. It’s supposed to be about developing programs for people with special needs or disabilities(no, the students aren’t all disabled; it’s about leading people who are), so I’m curious about how it will go. If it involves physical activity by us students then I might have to drop it, but I’ll make that decision after I see what it’s going to be like. I’m already thinking I’ll be judged for trying to take this class since I am on crutches, but whatever. The opinions of others don’t really matter much to me, especially when it comes to my leg.

Wow, this seems so negative! Hmm…something good that happened…oh, I worked on new crutch covers and put glow in the dark tape on my crutches, so that’s pretty fun! My roommate and I decided to make a “positivity board” to hang in our room and remind us to stay positive and think of the good things in life, so maybe I’ll put that on there. Even the little things count πŸ™‚

Well, I’m going to try to figure out what to do for the next several hours before my class! Stay safe, everyone πŸ™‚